Posts Tagged ‘awareness’


Uncover Ostomy’s new awareness campaign

February 1, 2013

Jess over at Uncover Ostomy just launched a great new awareness campaign! Read more about it on her blog or on this press release.

This video also gives you some idea of how these awareness T-shirts are supposed to be used!

Keep fighting,

Question: Will you be purchasing one of these awareness T-shirts (and wearing it proudly in public)?


Colon cancer screening recommended for those aged 50

May 10, 2012

An article posted from

March was National Colorectal Cancer Awareness Month and, keeping in step with the program’s mission to get more Americans in-the-know about preventing colon cancer, the American College of Physicians (ACP) released a statement that adults older than 50 should screen for colon cancer to decrease their chances of cancer-induced death. Their stance was published in a March issue of Annals of Internal Medicine.

In the statement, President of the American College of Physicians, Virginia Hood, M.D., said that little more than half of adults over 50 in the US actually get screened, despite a growing body of evidence that colorectal cancer screening is extremely effective in reducing chance of death. The group’s statement included updated guidelines compiled by experts from several medical societies. Adults over 50 should get checked once every 10 years, but patients with high risk such as those cancer-ridden family members should start at age 40, or 10 years before their youngest relative was diagnosed with colon cancer. Others who may live with increased chances of developing colorectal disease include African-Americans and anybody with a history of ulcerative colitis, Crohn’s disease or colon polyps.

Most experts agree that the best way to screen for colon cancer is with a colonoscopy. A colonoscopy is a 30-minute medical procedure, possibly longer if growths are detected, during which a small, flexible tube with a camera on it is guided through the rectum and up the gastrointestinal tract. While the tube’s inside, colonoscopy doctors called gastroenterologists can examine the colon for cancer symptoms. In addition, annual blood tests and a less comprehensive endoscopic procedure called flexible sigmoidoscopy every 5 years can also be used to screen for cancer, said the ACP.

According to Hood, patients should feel comfortable to discuss their screening options with their doctors. Each procedure comes with its pluses and minuses. Furthermore, regularity of screening and following up with your doctor if anything abnormal is found during a particular test is crucial to effective preventative care.

Patients should note that the ACP does not recommend regular colon cancer screening in anybody over the age of 75 because the risks of colonoscopy and related biopsy procedures is actually higher than the benefits. At that age, pre-cancerous growths are typically slow to develop and would, most likely, not be a problem during the patients’ lifetime.

Behind lung cancer, colon cancer is the most fatal cancer in the United States. The colorectal disease is expected to take away more than 51,000 lives this year alone. All the time, however, more and more studies are providing strong evidence supporting the effectiveness of screening procedures to reduce this number. A very recent study said that people who underwent regular colonoscopies actually increased their chances of living by 53 percent, a huge finding. Those who think they ought to be screened for colon cancer should find a GI doctor in their area to discuss their options. provides people with a listing of available gastroenterologists in their area, giving individuals with colorectal concerns access to an information portal where they can find credible and unbiased medical advice.

“An ounce of prevention is worth a pound of cure.” ~Benjamin Franklin



Two and a Half Ostomies ft. Hannah

November 21, 2011

Nadia and I recently made this video with our new friend Hannah, a young woman who also has a permanent ostomy. We talk in this video how we all try to raise awareness for IBD/ostomies, and how we seek out support for these conditions. Nadia and Hannah both have permanent ostomies, and Dennis used to have an ostomy, hence the title of the video.

To learn more about Hannah’s story, check out her blog Semi Colon.

~Nadia and Dennis

Question: What do you do to raise awareness for your disease/condition? If you have a blog, vlog, Facebook group, or other website, share it with us! If you don’t, just tell us what you do.


Colon Cancer Awareness Month

March 21, 2011

As some of you know, March is Colon Cancer Awareness Month. Colon cancer can be treated in 90% of cases, as long as it is detected early. One guideline everybody needs to remember: if you are over 50, it is recommended that you get a colonoscopy every 10 years. However, guidelines change depending on medical history and family history. People with IBD, especially ulcerative colitis, are much more likely than the general public to develop colon cancer. For more guidelines, click here.

The following video is from the Chris4Life Colon Cancer Foundation. Women discuss their colon cancer stories and the importance of fighting this disease. The second video is from Katie Couric reinforcing the need for early detection of colon cancer.

Keep fighting,

Question: Have you been diagnosed with colon cancer? Tell us how you detected the disease.


Familial adenomatous polyposis awareness

March 12, 2009

Hey everybody, I’d like to draw your attention today to Lisa, who has familial adenomatous polyposis (what a mouthful!). This is a disease that causes numerous polyps to grow in the colon, eventually leading to colon cancer. This disease is genetic and over half a dozen people in her immediate family have this disease. When the disease is caught early enough, treatment is similar to treatment for ulcerative colitis, including surgery to remove the colon.

And since it is Colon Cancer Awareness Month, Lisa wanted to draw people’s attention to this disease and to colon cancer. I don’t talk much about other colon diseases on this site but certainly those of us with ulcerative colitis are in this together with those who have other diseases. It’s really all the same, isn’t it? Our colons aren’t working and there’s not much we can do to fix things.

Lisa has two blogs that she maintains, Only for Moms and Mommies to Mommies. Though these sites have motherhood in the name, Lisa assures me they’re for everybody.

Those of us on the inside know the importance of colonoscopies in diagnosing illnesses early (those who have colons still) and colon cancer can be defeated if caught early enough. You’ve all heard the Public Service Announcements on TV that recommend that people over 50 get screened for colon cancer. If you fall into this category, don’t put it off! Colonoscopies really aren’t that bad compared to sickness.

So check these sites out and educate yourself on other bowel diseases.

Keep fighting,



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