Kids, Teens, and Family
Being young is hard enough, but being young with IBD is even harder. While there aren’t many resources for kids and teens with IBD, we do our best to find videos from those suffering with IBD and resources to help you manage the disease at this stage in your life.
If you are young and have made a video about your experiences with IBD, let Dennis or Nadia know!
Children’s Perspectives
1. Being a teenager with ulcerative colitis (10:12)
2. Children’s perspectives on celiac disease (4:02)
3. Going to school with IBD (4:16)
4. Growing up with colitis (4:52)
5. Improve Care Now (3:51) An innovative medical sharing project that is helping kids with IBD get into remission…all without the invention of any new drug.
6-7. Mother and daughter perspectives: Crohn’s disease (1:50 and 1:42)
8. Ulcerative colitis: Kids’ voices (4:07)
Parents’ Perspectives
1-2. Pregnancy and breastfeeding with IBD (4:13 and 1:37)
3-4. Pregnancy with Crohn’s disease (12:56 and 2:19)
5. Ulcerative colitis: Parents’ voices (4:41)
Family Perspectives
1. David Garrard on family (3:41)
2. Trusting others: Talking to family and friends about IBD (6:16)
3. Ulcerative colitis and family (4:51)
Nadia’s Family
1-2. Daddy’s interview part one and two (6:54 and 8:18)
3-4. Mom’s interview part one and two (8:50 and 9:35)
5. My brother Nabeel’s interview (10:57)
8. Time with Grandpa (9:32)
Useful Links
Camp Oasis: The CCFA’s incredible summer camp for kids and teens with IBD.
Camp Gut Busters: Summer camp for kids with IBD.
National Family Caregivers Association: The NFCA educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.
UC and Crohn’s: A site for teens sponsored by the CCFA.
Youth Rally: Summer camp for kids and teens with an ostomy.
