Crohn’s Disease
Crohn’s disease is one form of inflammatory bowel disease. It can affect the digestive tract anywhere from the mouth to the anus. It has no known cause or definitive cure. According to the CCFA, it affects 700,000 Americans.
Living with Crohn’s Disease
1. Ashley on being newly diagnosed with IBD (2:34)
2. Body image and self-esteem issues with IBD (9:18)
3. CCFA Webcast: Breakthroughs in IBD research (3:14)
4. CCFA Webcast: IBD and she (3:12)
5. Crohn’s and IBS poetry (3:30 and 2:13)
6. Cindy’s story with Crohn’s disease (4:21)
7. CURE your attitude (3:10)
8. David’s Crohn’s musical (9:21)
9. Exclusive interview with Ally Bain, creator of Ally’s Law, and her gastroenterologist Dr. Rubin (10:26)
10. Faces of IBD (7:04)
11-13. Gut Inspired (3:00, 2:29, and 3:01)
14. Health issues (4:28)
15. Inflammatory bowel disease PSA (3:16)
16. Julie’s Crohn’s disease story (10:48)
17. Leana’s Crohn’s disease story (8:19)
18. Learning to live with Crohn’s disease (3:45)
19. Living with Crohn’s and colitis: Five stories of courage (5:21)
20. Maintaining your dignity for a greater purpose (7:02)
21-22. Nadia’s testimony pt. 1 (9:11) and pt. 2 (9:11)
23. Nadia’s UCVlog intro (4:02)
24. Olympic kayaker Carrie Johnson has Crohn’s (5:38)
25. The Partial Portion; How illness affects choices (5:59)
26. Rae’s intro to Crohn’s disease (6:23)
27. Seize the day (7:16)
28-29. Steph’s testimony pt. 1 and 2 (7:52 and 8:04)
30. Support group (2:37)
31-32. Teenager Georgia’s Crohn’s disease story (4:51 and 5:28)
33. TP+IBD=OUCH!! (3:09)
34. We poop and pass gas. Get over it! (1:17)
Managing Crohn’s Disease
1. Being prepared: How to go out with IBD, an ostomy, and J-pouch (7:28)
2. The best resources for Crohn’s and colitis (8:36)
3. Causes of inflammatory bowel disease (12:35)
4. Crohn’s disease (3:12)
5. Difference between Crohn’s disease and ulcerative colitis (4:36)
6. Difference between IBS and IBD (4:01)
7. How to make a hospital stay less dreary (4:28)
8. Incontinence (2:46)
9. Intestinal ulcers (4:36)
10. Keeping stress levels balanced when dealing with IBD (8:34)
11. Keeping track of IBD symptoms (5:43)
12. Making the most of doctor visits (4:46)
13. Marijuana and IBD (2:50)
14. Obstacles that can stand in your way: Insurance company (3:29)
15. Preparing for the emergency room (4:50)
16-17. Sara applies for disability (5:20 and 3:59)
18. Smoking and IBD (2:43)
19. Surviving your first flare-up (6:01)
20. Tips for newly diagnosed with Crohn’s or colitis (8:23)
21. Using smartphone and iPad apps for inflammatory bowel disease (9:15)
IBDU.org: IBD University
1. Being in college with IBD (4:59)
2. Dealing with stress and IBD (4:41)
3. Dealing with work and IBD (3:07)
4. First diagnosed with IBD (5:58)
5. Going to school with IBD (2:59)
Useful Links
U.S. Organizations
Crohn’s and Colitis Foundation of America: The Crohn’s and Colitis Foundation of America is a non-profit, volunteer-driven organization dedicated to finding the cure for Crohn’s disease and ulcerative colitis.
Digestive Diseases National Coalition: The DDNC works cooperatively to improve access to and the quality of digestive disease health care in order to promote the best possible medical outcome and quality of life for current and future patients with digestive diseases.
Get Your Guts in Gear: Get Your Guts in Gear creates and produces events that bring together people who are interested in becoming part of a supportive community of people affected by Crohn’s disease and ulcerative colitis – as patients, caregivers, and friends.
IBD Quilt Project: The quilt panels tour the nation, raising awareness for ulcerative colitis and Crohn’s disease, including complications such as colon cancer and ostomy surgery.
National Digestive Diseases Information Clearinghouse: NDDIC was established to increase knowledge and understanding about digestive diseases among people with these conditions and their families, health care professionals, and the general public. This is a government agency offering booklets and information.
Take Steps: Take Steps for Crohn’s & Colitis is the CCFA’s national walk and celebration dedicated to finding cures for Crohn’s disease and ulcerative colitis.
Team Challenge: Team Challenge is the CCFA’s endurance training and fundraising program.
International Organizations
Intestinal Disease Education and Awareness Society: IDEAS is a non-profit organization working to make Canadians aware of the issues people living with intestinal disease face.
Crohn’s and Colitis Foundation of Canada: The Crohn’s and Colitis Foundation of Canada is the leading non-profit medical research foundation in Canada for inflammatory bowel disease.
