Archive for the ‘Crohn’s Disease’ Category

h1

CCFA video Q&A with TV actor Ken Baumann

October 25, 2012

The Crohn’s and Colitis Foundation posted a video of Ken Baumann, actor on The Secret Life of the American Teenager, talking about his Crohn’s disease and answering viewer questions. The video quality itself isn’t that good (really shaky camera), but we don’t have much footage of famous people talking about their IBD. The more people who have the confidence to share their stories, the better for all of us seeking acceptance.

Keep fighting,
~Dennis

h1

Gut Inspired: IBD and active living

September 24, 2012

Elliot from Gut Inspired discusses the importance of remaining active with IBD. It doesn’t always have to be much. Sometimes frequent, small bursts of activity can make a huge difference. I know when I was recovering from surgery, I took 6-7 walks a day, no more than 5 or 10 minutes. That activity really helped me recover.

If you are feeling run-down, try to find something active to do, even if you can’t make it to the gym. Have a friend or partner or spouse take a walk with you. Even if you don’t get better physically, you’ll feel better mentally, as you’ll feel less guilty for “wasting your time” sitting around the house doing nothing.

Keep fighting,
~Dennis

Question: What is one thing you can do to be active today? It doesn’t have to be much! Or, if you’re feeling really well, take advantage of your health and hit the gym!

h1

Gut Inspired: Making treatment decisions

September 21, 2012

Gut Inspired has a great video here about making treatment decisions. While the video is talking specifically about IBD, this advice really works for people with any bowel disease. Every treatment has risks and side effects: the question you need to ask yourself is: what kind of quality of life are you looking for?

Keep fighting,
~Dennis

Question: When choosing between treatment options, what kind of quality of life are you looking for? In other words, what can you live with, and what can’t you live with? Reply to this post and share your perspective!

h1

Gut Inspired: Kevin and Ashley on IBD and relationships

September 4, 2012

Kevin and Ashley from Gut Inspired discuss how they tell others about IBD, and what role in plays in their casual and romantic relationships.

Keep fighting,
~Dennis

Question: When being open about your disease, what’s the first thing you tell people? Share your story by responding to this post: it’s easy and free!

h1

Gut Inspired: Rob on being an IBD advocate

August 19, 2012

Gut Inspired is a group of individuals working to raise awareness of IBD in Canada. In this video, Rob Hill discusses how he advocates for his own health with the specialists he interacts with, as well as advocates for others’ health.

Keep fighting,
~Dennis

Question: In what ways do you advocate for your health with your own doctors? Tell us about your relationship with your doctors so we can help one another build stronger relationships!

h1

IBD in your words

May 31, 2012

Sara collected these stories for World IBD Day last week, and they’re so good I knew I needed to share them with you! Lots of patients just like you sent her videos about their experiences with IBD and something positive that has come of it.

Even though World IBD Day has passed, don’t think that means we can go back to keeping our disease to ourselves: every day is World IBD Day! Take courage and share your story to all who will listen.

Keep fighting,
~Dennis


h1

Marijuana and IBD

May 11, 2012

Earlier this week we posted a video about smoking’s effects on IBD: here’s a video from gastroenterologists talking about marijuana’s effects on IBD.

This video is simply food for thought. Nadia and I do not have experience with this, so we can’t direct you to more resources on this topic if you are interested.

Keep fighting,
~Dennis

Question: Have you tried medical marijuana before? How did it affect your IBD in the short-term and long-term? Feel free to respond to this post.

h1

Smoking and IBD

May 9, 2012

A video from the doctors’ perspective about smoking and IBD. Researchers don’t really understand why smoking affects people with IBD the way it does, but they do know of two strong associations: smoking makes Crohn’s worse, and it makes ulcerative colitis better. In the case of ulcerative colitis, though, smoking is NOT recommended for patients, as it has too many negative effects to warrant any positive effect it has on the disease.

Keep fighting,
~Dennis

Question: For the smokers, do you think your smoking has a positive or negative effect on your IBD? Share your story with all of us! You don’t need an account or email or anything to leave a comment.

h1

Ashley on being newly diagnosed with IBD

March 30, 2012

Ashley from Gut Inspired provides tips for those newly diagnosed with IBD.

Keep fighting,
~Dennis

h1

The best resources for Crohn’s and colitis

February 23, 2012

Maggie posted this wonderful video about the best Crohn’s and colitis resources on the web. She mentions a lot of websites, YouTube channels, and Facebook groups in this video, so there’s something for everybody (thanks for the shout out, Maggie!).

To find these websites, either Google the name and you’re sure to find the site, or click on the video while it’s playing to go to Maggie’s YouTube channel, which has all the links to the websites directly.

Keep fighting,
~Dennis

Follow

Get every new post delivered to your Inbox.

Join 151 other followers