Ostomystory: How to get through struggle after struggle
November 29, 2012In this video, Laura from Ostomystory talks about how she gets through health struggle after struggle. It’s not easy, and she doesn’t have any quick and easy answers. For those of you suffering with chronic illness, who are constantly having something go wrong, perhaps you can relate to the difficulty of this topic. It’s not easy to cope with illness. Hopefully through sharing stories and telling people what we do, chronic illness will get easier to manage.
Keep fighting,
~Dennis
Question: What gives you the strength to keep going in spite of your chronic illness? Respond to this post!
My strength, and I’ve
Suffered for 12 long years with UC, my great faith, that these surgeons, doctors and specialists in other areas, really CARE about us!! Do you find this to be true.
I’m struggling with the whole 2 surgeries, I’ve seen two surgeons and both have looked at all my scopes, etc.. How do I know it’s time to have the procedures?? Can anyone help me out there??
Thanks
John Schlosser
Wisconsin
Living w UC for 12 very long years!
Hello can someone please help me out?? I’ve been ok all day and a few hours ago this pain started in my stomach. It hurts so bad. I don’t have bad diarrhea so it cant be pouchitis. I’ve never had a blockage so i don’t no what it feels like. Im having normal amounts of bowel movements. It just hurts so bad. Even when I lay down. Can someone tell me what this is please ?? Should I take pain medicine?? Please answer me right away.Thank you so so much. I’ll be waiting
John if its been 12 years thats a long time to put up with uc. I have uc when i was 23 and lived with it untill i was 30. From 175lbs at 23 i can down to 87lbs by the time o was 30. I had no power no strength nothing. When i would eat my stomach was empty in minutes because my colon was so bad. The doctors told me I can get colon cancer any day because my colon looked deceased. I made up my mind that night. Went to ucsf medical center got admitted and my I was on my mission. But if u think your doing ok without surgery then dont have it. But if your very sick and having a bunch of bowel movements lots and lots of abdominal pain depressed all the time thinking ur never going to get better then its time to talk to the doctor and tell him you cant live like this anymore. Once you have a j pouch ur life will change day by day better and better just stay strong don’t get nervous it cant get worst then what ur going through right now thats a promise
I watched your video. You are absolutely right about having to go through so much pain. I went through about the same pain you did and I still can’t believe I handled all of it. Sometimes it was so bad I thought I wouldn’t wake up the next morning thinking I wasn’t going to make it.But some how some way you will. I hope the best for all of you. Take it day by day. Try not to think about it so much.Email me anytime to ask any questions. I has surgery 7 years ago.
Hello can someone please help me out?? I’ve been ok all day and a few hours ago this pain started in my stomach. It hurts so bad. I don’t have bad diarrhea so it cant be pouchitis. I’ve never had a blockage so i don’t no what it feels like. Im having normal amounts of bowel movements. It just hurts so bad. Even when I lay down. Can someone tell me what this is please ?? Should I take pain medicine?? Please answer me right away.Thank you so so much. I’ll be waiting
Sorry to hear about your recent UC dsagioins. Hope you are doing okay. In my years with the disease I was still able to do so many things despite the illness so stay positive and strong:) For many people, their IBD is well-controlled with meds and does not progress. It is good that you are doing lots of research and reading about other people’s experiences early on. Educating yourself about the disease and treatments is so very important. Hopefully my story has helped you see that if your disease ever got severe enough where surgery was needed, losing your colon does not have to stop you from leading a very full life.You are right that this is a very hidden disease. Even people I was close to had no idea I was sick in most cases because I never talked about it and just tried to live my life to the best degree possible with the pain and symptoms. It was crazy because right before going to the hospital with my final flare, when I felt extremely sick and was going to the bathroom over 20 times a day, people were still telling me I looked healthy including my doctor. I had spent the summer hiking and climbing before the severe flare came on. It must have been all that mountain sunshine that gave me the outward glow because I certainly wasn’t glowing on the inside:)