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Primary sclerosing cholangitis’s connection to ulcerative colitis

April 4, 2012

Here’s a great video from Mayo Clinic discussing primary sclerosing cholangitis, a liver disease associated with ulcerative colitis (in rare cases). It’s an autoimmune disease for which there is currently no effective treatment outside of liver transplant.

When I was first diagnosed with UC, my liver enzymes were out of whack, so we actually tested for PSC and did an MRCP at Mayo Clinic: the doctor in this video was actually my doctor! Then after my surgeries my liver improved dramatically, so now we’re not so sure about PSC (which I’m grateful for). I was told this condition is slow developing: as he says in this video, usually people in their 40s and 50s are diagnosed.

I know very few of you will ever have to worry about PSC. But because it is associated with UC, it is still good to be informed.

Keep fighting,
~Dennis

Question: Have you, or anybody you know, been diagnosed with PSC? What are your experiences with this disease?

3 comments

  1. if you have psc, please look into the work being done with children at stanford under Dr Cox. Vancomycin is emerging as a very promising treatment for PSC and all of the children on this clinical trial have had their PSC go into remission.


  2. Very informative thanks… I was diagnosed with PSC last October and this has been information has been a great for my own knowledge….


  3. Very informative! Many thanks for posting this.



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