Primary sclerosing cholangitis’s connection to ulcerative colitisApril 4, 2012
Here’s a great video from Mayo Clinic discussing primary sclerosing cholangitis, a liver disease associated with ulcerative colitis (in rare cases). It’s an autoimmune disease for which there is currently no effective treatment outside of liver transplant.
When I was first diagnosed with UC, my liver enzymes were out of whack, so we actually tested for PSC and did an MRCP at Mayo Clinic: the doctor in this video was actually my doctor! Then after my surgeries my liver improved dramatically, so now we’re not so sure about PSC (which I’m grateful for). I was told this condition is slow developing: as he says in this video, usually people in their 40s and 50s are diagnosed.
I know very few of you will ever have to worry about PSC. But because it is associated with UC, it is still good to be informed.
Question: Have you, or anybody you know, been diagnosed with PSC? What are your experiences with this disease?