
Video Glossary: What is Immunocompromised?
June 26, 2010
Has your long term battle with illness weakened your immune system? Let the IBD community know!!

Has your long term battle with illness weakened your immune system? Let the IBD community know!!
Nadia, not sure if you will read this since this was an old posting of yours… I was diagnosed 2011 with UC, I have been in and out of the hospital since. I am currently on remecade and methetrexate as well as fluristor and couple other meds. I know the biologics and chemo therapies lower your immune system I work at a hospital as a nursing assistant, and I was in nursing school when I was diagnosed. I had to withrawal from school because I missed too much of classes, and I was too weak to return. and try to catch up. My doctors currently have me on restricted work because of my immuno supressants…. my employer allowed me to work as a a unit secretary so I do not have contact with sick patients…. I keep thinking this is all going to be over like a bad dream. my colitis is better but my joint pain and swelling is worsening… I guess the inevitable is that I will not be able to return to nursing school , or work with patients…. Im very angry….. I feel like so much has been taken from me….. and im angry all the time…. how do you deal with your anger? you and Dennis do not have children yet… I have four children, so rest and takeing care of myself is hard…. fianncially we need my income… and I need to go to school to get better income…. I was doing well before and lost all myhard work in the three classes I was taking.. I just dont think people quite understand that its not that I am just sick… that I just have to take medicine….its that I have limitations on my life.. my choices are reduced….this disease is controlling so much of my life… Im so sick of it…. I really am…. I hate IBD!! and I hate everybody that thinks I should just be happy I am alive…. what is living if you cant do what you want to do?? arent you trying to go to medical school as well? How do you expect to go work with sick people when you are on remecade yourself? I think people get a false feeling that even with IBD you can still do anything a well person can… because it just is not true…. how can I go back to nursing school when I cannot even be in a patients room… ???? you think, yea its no big deal, I just wont go to isolation rooms..but so many of our patients come from the ER and we end up finding out days later that they have TB or MRSA or CDIFF… after we have been all up in their faces, and everywhere else.. the reality is… my dreams have been taken away from me…. and I cant figure out now… what to do… how to make something out of all this caos???? I HATE IBD!!!