First case of pouchitis pt. 2
February 17, 2010Sorry for the delay in getting this video out. Over two months ago I posted a video describing my first case of pouchitis. Well, I’ve been off the antibiotics for two months now and wanted to wait and see what kind of effect they would have long term.
Long story short, my frequency has returned to what it was before and my J-pouch is working fine again. We’ll see how long I can go before getting pouchitis again.
Keep fighting,
~Dennis
Question: For those who have gotten pouchitis, how long did it take you to go back to normal? Reply to this post!
Thank you for the update on your pouchitis. I’m considering jpouch surgery myself; your posts provide me much good information to consider!
Hi Dennis, your website is great.
I found a piece of published scientific research about probiotics and pouchitis: “Prophylaxis of pouchitis onset with probiotic therapy: a double-blind, placebo-controlled trial”, published in the journal Gastroenterology, in 2003 (issue 124, pages 1202-1209). Authors Gionchetti, P. and others from the University of Bologna in Italy.
Their research results found that two of 20 people (10%) treated with probiotics had an episode of acute pouchitis compared with 8 of 20 people (40%) who received the placebo (dummy drug). They concluded that treatment with probiotics was effective in the prevention of the onset of acute pouchitis and improved the quality of life of people with ileal pouch-anal anastamosis (I think this must be jargon for a j pouch or at least something similar).
I wondered if you or anybody else had tried probiotics?
Also in one of your blogs you mention cipro. The authors mentioned above say that the antibiotic metronidazole can also be used to treat pouchitis so at least in Italy there are multiple drugs available according to these authors.
Hi Jools,
Thanks for the info. I’ve heard others say that probiotics helps them out. I’ve been experimenting the past few weeks with probiotic milk/yogurt every day to see if that does anything at all. Other people have told me that’s the type of probiotics they use, though I guess you can also find it in pill form for more money.
You’re also right, ileal pouch-anal anastomosis is the same as J-pouch. It just means connection between the “ileal pouch” (the ileum is what the J-pouch is made from) and the anus.
Dennis
Hi Dennis!
I really appreciate your video clips, they have really helped me a lot! I had my large intestine removed Dec 08, illeostomy was really great, I have to say that if I had known how great it would have been, I would not have endured with UC for the eight years that I had.
I then went in for j pouch surgery this Jan 2010. Instead of a three step procedure, where the second step would be to allow the j pouch to heal for three months, the surgeon decided to complete the last two steps in only one. Meaning, I was hooked up and ready to go immediately after surgery!
I noticed an increase in bile, and nausea, but this passed, and now my j pouch is almost healed completely a month later. I am going to the washroom 8-10 times per day, and 3 times per night. And have noticed the movements gradually thickening and slowing down. For anyone who is about to undergo this procedure, I recommend this product to sooth and heal the anus area: http://www.rockwellnutrition.com/unda-270-ointment-by-unda-seroyal.html
I was using the creams that were recommended, but found they were not as soothing or healing the skin, and so I highly recommend this product, which is also good for diaper rash! I am using soft kleenex right now, and having small warm baths as often as needed each day. Metamucil taken in the morning, or when needed really helps to slow the movements down.
I hope this helps anyone giving thought to having this procedure!
Thanks a lot Dennis!
Kristin.
Hi Dennis
Your website and videos has provided me with a invaluable information. I suffered UC for 3 years. I was being hospitalized every 3-5 months. However my productivity and independence remained. On January 25th I had emergency surgery to remove my colon. I didn’t have a choice (that or death) because the UC had stopped taking the medicine. I dropped from 175lbs to 125lbs in 1.5 months, I’ve never been sicker in my life. I’m going into stage 2 surgery for the J-pouch in April/May 2010. The questions I have are (and yes I’ve seen your videos):
1. With “But burn” are you finding that unless you strictly control what you eat and when that bowel movements increase and BB (Bu
Hi Dennis
I had my emergency surgery on January 25th 2010. I go into stage 2 surgery (loop ileo) for the J-pouch in April/May 2010. I’ve seen all your videos and I have a few J-pouch questions.
1. I hear most people talk about “butt burn” (I’ll call it BB). Do you find that this is something your always combating? (does it ever stop being a problem?). Are you always needing to use creams to maintain it?
2. Are you finding at all that your needing to hold stool back all the time. What I mean is do you feel like you always need to go to the bathroom. Although you have no urgency, you have no pain, you can just feel the pouch always filling and your always needing to hold back?
3. Its week 6 of my surgery and I’m finding I can eat more solid foods. At first I had 2 very painful blockages and I’m still very afraid to eat too much solids at once. Is this a problem that you had? if so were you ever able to eat say a hamburger and fries and not have blockages?
Hi Mike,
Thanks for watching my videos and for your questions.
1. The BB lasted for me about 4 weeks into using my J-pouch. Since then, I’ve been pretty clear on that front. Occasionally I have some burning that might last for two or three days, but usually I don’t use creams anymore and just be careful wiping and it goes away on its own. So I haven’t had any continuing problems with it.
2. In the beginning, you are more aware of stool in your J-pouch. Part of the frequency is just thinking that you have to go when really there’s barely anything in the pouch. But now, for me, when the feeling comes up to go to the bathroom, it’s because I actually have to go. I can ignore it for awhile 30-60 minutes if I have to, but then the feeling happens so often that it’s best just to go to the bathroom.
3. I only had one partial blockage after my surgeries. I had no problems after my takedown surgery. Now don’t quote me on this, but what I think is what happens partially is that the intestines get moved around a little during surgery, which probably contributes to the blockages. But over time the intestines seem to “settle” back into place and food passes through freely. I don’t know if that’s exactly how it works, but from what others have told me they mostly have blockages soon after surgery, not usually many months or years after surgery.
Email me if you have other questions.
Dennis
[...] 2010 Some of you may remember, about eight months ago I had my first case of pouchitis (Part I : Part II), an infection of the [...]
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