Archive for September, 2009

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IBDU: Dealing with stress and IBD

September 11, 2009

IBD University has a great video up about destressing your life when IBD starts to take over.

Keep fighting,
~Dennis

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New articles in the Phoenix

September 10, 2009

For those who are unfamiliar, the UOAA helps support an ostomy magazine called the Phoenix. The magazine comes out every three months and is a great resource for people living with ostomies. For those who are even living with an ostomy temporarily, the magazine is filled with stories of hope about other ostomates who are making their way in this world.

In the September 2009 issue, you’ll find a story by me about how the ileostomy surgery, not the J-pouch surgery, ultimately saved my life.

And even better, you’ll find a story by our friend Nadia. In her piece she talks about the struggles she has gone through, and the good that has come of it. If you’ve ever seen her videos, she’s almost always smiling and laughing in spite of her setbacks. Her attitude towards this whole disease thing is definitely commendable.

Keep fighting,
~Dennis

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IBDU.org: Dealing with work and IBD

September 9, 2009

It seems like there are more and more targeted websites for IBD all the time. IBD University is a website designed to help teens with IBD transition into adulthood, and therefore make more and more health decisions on their own. They have a variety of articles available on their website covering common health, money, and relationship issues. Some of the articles are fairly short and thus provide more of an overview of a given topic than helpful information.

The site is sponsored in part by the Children’s Digestive Health and Nutrition Foundation and the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition.

The following video, the first available from IBDU.org, is about when and how to tell an employer about your disease. I’m very jealous of the graphics in this MTV-esque video.

Keep fighting,
~Dennis

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Nadia’s in the hospital again

September 7, 2009

Hey everybody, Nadia was doing fairly well with her J-pouch for about six months. Then she had some complications. Most recently, she spent a week in the hospital after watching her J-pouch get sick (bloody stools, all that fun stuff).

They did a pouchoscopy and found some slight inflammation and ulcers developing. This video covers most of her time in the hospital, right before she starts college for the first time. She has yet to make a video describing the treatment plan for her J-pouch problems but hopefully it isn’t a serious issue.

Nadia’s fighting through it all,
~Dennis

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Look good feel good

September 4, 2009

Fernpixel has a new video up about the importance of looking good. She’s not trying to be vain. Her message is a good reminder that if you look good you feel good. For those of us who are sick frequently and often, trying to make yourself look presentable goes a long way in bettering your mental health.

Keep fighting,
~Dennis

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UOAA fashion show photos

September 1, 2009

This August, C3Life.com sponsored the 2009 United Ostomy Associations of America National Conference Fashion Show (what a mouthful)

To see photos from the event, click here. For those considering ostomy surgery, you will find dozens of confident, smiling faces of people just like you who are living just fine with their ostomies.

Keep fighting,
~Dennis

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