Archive for July, 2009

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Telling people about your ostomy

July 11, 2009

There’s an interesting new article on C3Life entitled Telling People About Your Ostomy.

Written by Sheryl C., an ostomate of over 18 years, this article describes how she tells others about her ostomy, including friends, family, coworkers, and romantic partners.

For those of you who go through surgery, you will have to learn how to tell others about your ostomy. In many ways you can hide it and never have to mention it to some people. Other times it might be almost impossible not to bring it up. How you do it and what you tell people is up to you. But one thing I found was true, and I think most ostomates will agree, is that people won’t shun you just because you have an ostomy. They will still treat you as normal for the most part. Very rarely does somebody tell me that a loved one has rejected them because of an ostomy.

Keep fighting,
~Dennis

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100 videos now up!

July 10, 2009

Hey everybody, another milestone was reached yesterday here at the United Colon Vlog: 100 original videos now posted! When I first started this project I figured I’d make a few videos about my journey with flare-ups and surgeries and then do a video about emptying an ileostomy appliance and changing it. Once I got started in this project I realized how much ulcerative colitis had changed my life and affected every part of it. I started making videos about all aspects of living with colitis, living with an ileostomy, and living with a J-pouch.

This is how we end up with 100 videos.

Some of these videos are more popular than others. But for those of you who are new to this site or who have followed it half-heartedly for a few months, now might be a good time to go back and check out some videos you have missed.

And increasingly I am finding more videos about ulcerative colitis and ileostomies from others, plus three people are currently helping me translate select videos into other languages, bringing the total videos available on this site even higher.

If you are thinking I’m running out of ideas, you have another thing coming! I have a list of video ideas that I add to every week. Most likely all of them won’t be made into videos but certainly I have enough ideas for the next 100 videos. I have a ton of videos planned describing various medical procedures and issues–I really haven’t focused on that too much these first 100 videos. Plus I have more videos about ileostomies and J-pouches planned as I haven’t covered everything there is to know yet.

And, of course, I’ll continue to update you on my progress as the months tick by. Recently I gave you a six month J-pouch update–there will be more updates in the future.

With any luck, and a little help for you, I will soon get some Gutbending videos made, but I can’t do that if I don’t get videos from you guys. Some day, too, I’d like to make original videos featuring other peoples’ stories, as my perspective is only one perspective.

If you have any video ideas, reply to this post and let me know! I have fun doing this project and hope to continue it long into the future!

Keep fighting,
~Dennis

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J-pouch dreams

July 9, 2009

You’ve seen my video about my ileostomy dreams–now see the other side of the coin: my J-pouch dreams. I’ve written about a few of these dreams months ago.

The Wolves
The Ostomy Bag
The Window Bathroom
The Doctor Visit

Why have I only told you of four dreams compared to the ten dreams with my ileostomy? Watch this video to find out why.

Keep fighting,
~Dennis

Question: For the J-pouchers: do you have J-pouch dreams? Post your experiences!

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Ileostomy dreams

July 7, 2009

When I had my ileostomy I frequently had dreams about having an ileostomy that preceded waking up to empty the pouch. You can find written accounts of some of these dreams here:

Can’t Flush the Toilet
Frozen Stool
Labeling My Ostomy Pouch
The Professor Visits
The Auditorium
New Pouches
The Jungle
The Tree on the Man
The Metal Frame
Help with my Pouch

This video features my reflections on this very bizarre aspect of living with an ileostomy.

Keep fighting,
~Dennis

Question: What kind of ostomy dreams do you have? For those of you who’ve had the ostomy for years, do you still have these dreams? Comment on this post!

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Spanish Subtitled: Second Surgery

July 3, 2009

Another video with Spanish subtitles, this one about what was involved with my second surgery. These Spanish videos are really starting to get popular so if anybody wants to help me transcribe my English videos that would help a lot in getting an accurate translation in another language. Even if you can only help me transcribe one video that would be an immense help, I really mean it.

Keep fighting,
~Dennis

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CDHF: Managing colitis at work

July 1, 2009

The Canadian Digestive Health Foundation is a group working to help those with digestive diseases. The CDHF has a video on their website about an adult woman who suffers with ulcerative colitis. Watch her story to see how she manages her work life in spite of this disease.

Keep fighting,
~Dennis

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