I can relate, however, to the dreams. A few times a week, I will dream about not being able to find a bathroom in time, or if I do, the toilets in the bathrooms aren’t working, or people are watching, or something along the lines of not being able to get to a safe place to empty the j-pouch. I always have a j-pouch in the dreams though and am very aware of my situation. This still happens routinely and has not subsided.

The way I manage it is to not eat before bedtime. I cut my eating to no later than 8-9pm, so by midnight-1am (my typical bedtime), I will have emptied the pouch as much as possible, therefore eliminating the need to go during the night. By morning, I do have to empty the pouch, but I don’t have the urges during the night while sleeping.

I’ve found it remarkable how many ways my brain can depict the full pouch in a dream. It’s never the same.

Stay well.