If anybody ever reads the blogs on J-Pouch Life you’d be familiar with Brevin, a good-natured guy who currently lives with an ileostomy. He posted a comic that he had done this week that captures one of the more interesting aspects of living with an ileostomy.
My output used to squirt out five feet or more in the shower.
Brenda Elsagher–comedian, national speaker, and ostomate–set out to find the humor in living with an ostomy. She’s included stories from herself and dozens of other ostomates about some of the funny situations they’ve found themselves in over the years with their ostomies.
For those who face the prospect of ostomy surgery and are worried sick about what life will be like, I strongly suggest you check out this book. Life isn’t all doom and gloom when you have an ostomy.
This video describes the complication that arose three months after my takedown surgery: three small blood clots in my lungs. This first video covers what happened to me; the second video will cover the causes and treatment of the blood clots.
Hey everybody, a few weeks back I started this new project called the Gutbending Declaration. The purpose of this project is to show those considering surgery that living with an ileostomy is better than living with ulcerative colitis.
The main expression of this project is a video series I hope to start soon. But I need your help! If you agree that living with an ileostomy is better than living with ulcerative colitis then make a short video of yourself telling this to the world and email it to me as soon as possible. I will take all the videos received and compile them together to show those who are considering surgery that they are not alone in this journey.
Keep your videos short and the file size small and they should send fine. Even if you only have a digital still camera it probably has the capabilities to make short videos and that works fine.
I currently have a couple videos from people who’ve made the declaration but I need more! Your help is vital to the success of this project.
This site’s been around for awhile, but maybe you haven’t heard of it: C3Life. The C’s stand for your “Ostomy Community Connection Center.” This community outreach service, sponsored by Hollister, is one of the most comprehensive ostomy support sites I’ve found yet.
This is one site you will want to bookmark and come back to again and again. For new ostomates it will let you know that you are not alone in this way of life, and there are plenty of resources to support you.
I’ve mentioned this ostomy fashion show before, and the group has a new video up, this one about model Rosemary Griffiths. Her tenure with an ostomy has been relatively short, though she suffered with IBD for years.
The point I want to make with this video is a point that I’ve made often already, both privately and publicly: avoiding surgery simply for fear of living with an ostomy is no way to live. As Rosemary states in this video, she avoided surgery for nine years, and now that she has the ostomy, she wishes she would’ve had surgery much sooner.
It’s worth noting that many people tell me the exact same thing after they finally get surgery.
Many of us have ostomies only temporarily. And many people around the world are in need of supplies. So if you have any extra unused, new, and clean supplies, send them our way!
We are collecting supplies to send to Haiti with a medical team!
Current progress:
1114 bags and flanges
2108 medical supplies