Comments on: Your appearance isn’t a factor for surgery http://ucvlog.com/2009/05/15/your-appearance/ Support for those with inflammatory bowel diseases. Thu, 09 Feb 2012 00:38:44 +0000 hourly 1 http://wordpress.com/ By: Art http://ucvlog.com/2009/05/15/your-appearance/#comment-1780 Fri, 04 Feb 2011 17:11:44 +0000 http://ucvlog.com/?p=924#comment-1780 Your message is tough to swallow. I had a ‘temporary’ illeostamy surgery 10 months ago. I found out a few days ago from a final specialist that my illeostomy is permanent due to unexpected and untreatable strictures in my rectum.

Had I known this was going to be permanent I may not have permitted the surgeon to do the invasive surgery that he did. Everyone tells me that I should be happy to be alive and cancer free. Somehow that isn’t much comfort.

I understand the need for your message. I’m nowhere yet close to accepting the permanence of this thing. It IS a big deal for me. :(

Though I suspect some day I’ll get to where you are attitude-wise, I”m not there yet.

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