Book Review: Crohn’s Children’s Book
December 30, 2008While casually surfing the Net for information about IBD’s (funny how your interests change when you have such a disease. I used to peruse Dragonball Z websites) I ran across the CH.I.L.D. Foundation, a Canadian support site for Children with Intestinal and Liver Disorders. I’m sure there are such support groups in the US for children, though I can’t ran across any yet. For my Canadian viewers it might be worth checking out.
One thing I wanted to call attention to is the children’s “Story and Colouring” book the site offers, Jeff Talks About Crohn’s Disease. The foundation will send a copy of the book free to anybody, even here in the US. Parents who have little kids with IBD’s might find the book useful.
The book tells the story of 6-year-old Jeff and how he discovered he has Crohn’s. The doctors do bloodwork, an endoscopy, and x-rays. Then he modifies his diet, meets with his doctors regularly, and stays active. The book is general enough that the same steps Jeff goes through could easily apply to a child with ulcerative colitis, the only difference being that a colitis kid would undergo a colonoscopy instead of an endoscopy.
I don’t know much about children’s education so I don’t know how helpful this book is. It’s very vague about what Crohn’s disease actually is. It makes zero mention of bowel movements or problems or pain, which I found interesting. There’s still value in it, though.
Keep fighting,
~Dennis
Question: If you have a little kid with an IBD, how do you explain the disease to him/her?
Do you know if there are any books out there regarding suggestions, medical advice, diet suggestions, issues and treatment for people with a J Pouch? I have been looking, but have been unable to find one. Thanks.