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Losing Control pt. 2

December 17, 2008

Hey everybody, sorry for the lack of a post yesterday. It was quite the long day doing bloodwork, an MRI, and meeting with the liver doctor about my PSC. Every test and appointment was delayed and pretty soon the day was over and I still hadn’t eaten much of anything yet (not supposed to eat anything before an MRI). For those who’ve never had an MRI, let me tell you, it’s quite the experience.

In the end, the liver tests were quite positive. The damage to my bile ducts is almost minimal at this point and it’s possible that I don’t have PSC, which is good news. Or, if I have it, it’s in the super super early stages, which means that as we monitor it over the years we can hopefully catch it when/if it starts to get worse.

Yesterday’s Stool Count: 8 during the day, 3 during the night.

The Day Before’s Stool Count: 8 during the day, 4 during the night.

It might sound rough in terms of stool counts but again it’s not bad. For the first couple weeks I’m supposed to just go when I feel like it. If I try holding it back I could break the connection in my intestines, which would be bad. So it’s best to play it safe for now and work on decreasing the frequency after Christmas.

Today’s video brings us back to the days of my colitis and the second time I completely lost control of myself. I mention in this video that this second time was perhaps the worst in terms of impact, but in reality, every time you lose control of your bowels it’s the worst time because you start to realize more and more how bad of a situation you are really in.

For those looking for a bit of humor, I came across this great article by humorist Dave Barry about the first time he got a colonoscopy. All I have to say, jokingly, is what a baby! As you colitis and Crohn’s sufferers know, colonoscopies are hardly a big deal compared to other stuff we’ve put up with!

Keep fighting,

-Dennis

Question: Have you ever lost control of your bowels in public and had NOBODY there to help you?

2 comments

  1. Ugh, this story just breaks my heart! I had no idea people had to deal with this kind of medical problem.

    You seem to handle yourself so well — like you said, what else could you have done?!


  2. Dennis:

    Thank you for this candid video about “Losing Control.” People who are watching your Vlogs need to know what we go through on a daily basis with this disease. I have “lost control” numerous times in public and once even on a date when I was out fishing. You talk about wanting to cry; I just wanted to shrivel up and die I was so embarassed.



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