Comments on: Having an ileostomy forever

By: Anonymous

Anonymous — Fri, 07 Aug 2009 09:09:31 +0000

I agree! I have had an ileostomy with bag for 7 months, and it feels like I have my life back!
I suffered with UC for 8 years, and if I had known it was going to be like this, I would have had surgery about 5 years ago or so. (laughing!)
I am a very happy camper now!

By: Anonymous

Anonymous — Fri, 07 Aug 2009 04:51:18 +0000

Ive had an ileo for over 2 years now, its permanent, i chose that over the jpouch.
First i wanna say its great that you have done this to help other people see what life is like post surgery.
But i also wanna say that having an ileo doesnt make anything harder and there is nothing physically you can do with one that you can do without.

By: Anonymous

Anonymous — Wed, 04 Feb 2009 09:38:07 +0000

really not a big deal. i have one and it’s not THAT bad.

By: Elaine Carroll

Elaine Carroll — Thu, 20 Nov 2008 00:00:27 +0000

thank you I learned a lot from you today. I have had mine for 7 weeks so have a while to go. Thanks again

By: Tena

Tena — Sat, 01 Nov 2008 14:59:57 +0000

I agree. Would I rather not have it? Yes. Would I trade it for being sick? No way. Since I have had my ileostomy, I have swam in pools and oceans, water and snow skied (with a protective belt), hiked, camped, taken many trips by car and plane, worked fulltime, exercised, rode on any ride at Disney World, and most importantly…. had two wonderful baby boys who are 7 and 4. I did have c-sections since my j-pouch is still in but not hooked up. The bottom line, yes it changes your life. Yes, sometimes it is harder than you wish if were. And yes it has given me a much better quality of life than I would have had otherwise.

By: Amber Tresca

Amber Tresca — Wed, 22 Oct 2008 00:23:31 +0000

Well said! I dearly love my 10 year old j-pouch, but if I had to choose between having an ileostomy or the UC back again — I’d choose the ileostomy. It really ISN’T a big deal. When I had my temporary ileostomy between the 2 surgeries, I went out for Mexican food and sat through an entire movie (!!) for the first time in years. All the best to you Dennis, thanks for doing this!