Message to the long sufferers
October 17, 2008In the short time since I’ve started this vlog, I’ve been in contact with so many people who have ulcerative colitis. People who have had surgery years ago, people who recently had surgery, and people who’ve had the disease for years. And most people’s stories, it seems, follow a similar tale. The person is diagnosed with ulcerative colitis. They have a few problems and muddle through it for a few years. Then the disease gets worse and medicine begins to fail them. They suffer with the disease in a near constant flare up for several years, finding relief nowhere. This video is for them.
Keep fighting,
~Dennis
Question: How much suffering will you put up with before having surgery? What is your breaking point? Please leave a comment!
Hi — I could not help but notice your blog. It reminds me of my condition after my last Crohn’s surgery (I’ve had a few over 27 years since diagnosis). I remember wanting to reach out and wanting to share my observations and feelings with others. I only wish that blogs were around then.
Anyway, in catching your tag (or category label) “Important Words”, I thought I might share the word “Gluten”.
After many years with Crohn’s, I was diagnosed with Celiac Disease which is common with Crohn’s. This disease requires a Gluten-Free lifestyle.
Well, in my recent research I also noticed that a Gluten-Free Diet is also recomended for persons with Crohn’s who have not been diagnosed with Celiac Disease. So, I thought an important word would be “Gluten”.
Check out my blog at http://www.glutenfreesimplicity.wordpress.com
I have heard of Celiac disease and it sounds like a tough thing for some people, especially when kids get it. But I’m glad you’re blogging and turning your negative experience into a positive!
-Dennis
Dennis,
I was diagnosed with UC and had surgery just two weeks later. I didn’t respond to IV steroids and I wasn’t comfortable with trying Remicaid (I didn’t want to open myself up to infection). I’m just 3 weeks post-op now and am trying to figure this whole thing out, but I am glad that I did the surgery. I’m nervous about the future, as I go through two more surgeries, but I feel this is much better than my struggle with Colitis. Thanks so much for your vlog – I’m learning a lot from you.
-Leah
I’m a fighter, so I’ll put up with my U.C. until I’m told my intestines are of no use anymore