Comments on: The United Colon Vlog http://ucvlog.com/2008/09/30/hello-world/ Support for those with inflammatory bowel diseases. Tue, 29 May 2012 14:30:58 +0000 hourly 1 http://wordpress.com/ By: Carla Head http://ucvlog.com/2008/09/30/hello-world/#comment-3066 Sun, 25 Dec 2011 04:43:09 +0000 #comment-3066 Wishing everyone a Merry Christmas and a Happy New Year, and especially a Healthier New Year in 2012!

]]> By: insidethemindofstephydawn http://ucvlog.com/2008/09/30/hello-world/#comment-2952 Wed, 30 Nov 2011 16:40:41 +0000 #comment-2952 Wow, I have only just stumbled across this blog and I want to say how amazing and inspirational you both are. I was misdiagnosed with IBS for months until it led to being hospitalised, from there they found out I had ulcerative colitis. I was inside for 2 weeks because steroids didnt work as tablet so had them IV. 10 weeks later prednisolone steroids tablets havent, i’ve just come off them and i am taking azathioprine and pentasa. Just been for a colonoscopy and they think I also have crohns as well. It is difficult being young and having something invisible but painful. I haven’t had the surgery yet but if it gets to needing it I know where to come for the advice. I had depression and anxiety before so it is harder to cope with this but I am taking it day by day.

]]> By: Barb Delaney http://ucvlog.com/2008/09/30/hello-world/#comment-1296 Fri, 18 Jun 2010 17:39:29 +0000 #comment-1296 Remicade is indeed a good drug for many people. For some people it works very well. For me, it offered only marginal positive effects for a very short period of time, then did nothing for me. The question many people have, including my doctors at time, was how well Remicade would work long term. This study in the blog you mentioned checked up on patients after a year. But ulcerative colitis is a life long disease. How well will Remicade work after 5 years? 10 years? 30 years? Remicade was only approved for use in ulcerative colitis a few years ago. Hopefully it’s effects continue with extended use.
+1

]]> By: Renay http://ucvlog.com/2008/09/30/hello-world/#comment-1173 Mon, 29 Mar 2010 17:23:14 +0000 #comment-1173 Fieldwork Denver is putting togather a focus group about Ulerative Colitis. It is going to take place in Denver and pays you 125.00 for your time . If you are interested please give me a call at 303-825-7788 . Thank you for your time

]]> By: ucvlog http://ucvlog.com/2008/09/30/hello-world/#comment-977 Thu, 03 Dec 2009 01:51:38 +0000 #comment-977 Remicade is indeed a good drug for many people. For some people it works very well. For me, it offered only marginal positive effects for a very short period of time, then did nothing for me. The question many people have, including my doctors at time, was how well Remicade would work long term. This study in the blog you mentioned checked up on patients after a year. But ulcerative colitis is a life long disease. How well will Remicade work after 5 years? 10 years? 30 years? Remicade was only approved for use in ulcerative colitis a few years ago. Hopefully it’s effects continue with extended use.

~Dennis

]]> By: mjb7877 http://ucvlog.com/2008/09/30/hello-world/#comment-971 Mon, 30 Nov 2009 03:51:55 +0000 #comment-971 My bestfriend was diagnosed with UC a few months ago and we’ve been doing a lot of research online, especially about surgery.I just read on this great blog that Remicade will help with a colon cleanse to avoid a colectomy. Read more: http://www.orderonlinedrugs.com/drug-news/2009/10/13/colitis-patients-rejoice-this-drug-may-help-you-avoid-surgery/.

]]> By: sabrina http://ucvlog.com/2008/09/30/hello-world/#comment-710 Tue, 16 Jun 2009 02:42:50 +0000 #comment-710 hello. im sabrina from argentina. i have or had Cu. im with an ileostomy. take a look my 2 webs.
http://www.colitisulcerosa.blogspot.com
http://www.miileo.blogspot.com
i undertand english but i dont write well.
i have 27 years old. im with this thing from year 2004.

by!

]]> By: Jack Millman http://ucvlog.com/2008/09/30/hello-world/#comment-89 Wed, 24 Dec 2008 19:11:36 +0000 #comment-89 Dennis:
Please look at this site. celebrationostomysupportbelt.com
My brother was an ostomate and invented this belt.
I have sent many of them to ostomates. This is a belt that would solve a loty of your concerns.
I am going to be offering this for sale on line shortly.
Let me know if I can give you any help or information.
Jack

]]> By: Laura http://ucvlog.com/2008/09/30/hello-world/#comment-87 Fri, 19 Dec 2008 05:54:50 +0000 #comment-87 Hi Dennis

Thanks for your site which has informed me more to what is involved with the UC surgery. My son (25) is going through his second bout. We have talked about surgery but are afraid that he may never get rid of the “poop bag”. I have not yet completely viewed all your videos to the end, but I m curious if you got rid of your bag. Feel free to email us!

Laura

]]> By: Aunts, Elsie,Lucy,Bernie http://ucvlog.com/2008/09/30/hello-world/#comment-81 Sat, 13 Dec 2008 15:57:53 +0000 #comment-81 Dennis…was glad to hear from your dad on Thursday…another hurdle accomplished…we are happy the surgery is over and went well…now it’s on to recovery…we wish you great health in the future.

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