The United Colon Vlog
September 30, 2008Welcome to UCVlog.com! Here you will find TONS of information about living with inflammatory bowel disease, living with an ostomy, and living with a J-Pouch. Take it from two young people who have been through it all and aren’t afraid to share their stories.
Donate Ostomy Supplies to Haiti!
If you have any unused/new ostomies supplies that you no longer need, send them to somebody who does! The people of Haiti need our help.
This is a great idea for a blog–well done.
I stopped by to let you know that I’m running a contest to benefit the Crohn’s and Colitis Foundation over at my blog On the Red Line.
I’d love it if you stopped by and checked it out:
http://jcnemecek.com/grosvenor/?p=445
Dennis…was glad to hear from your dad on Thursday…another hurdle accomplished…we are happy the surgery is over and went well…now it’s on to recovery…we wish you great health in the future.
Hi Dennis
Thanks for your site which has informed me more to what is involved with the UC surgery. My son (25) is going through his second bout. We have talked about surgery but are afraid that he may never get rid of the “poop bag”. I have not yet completely viewed all your videos to the end, but I m curious if you got rid of your bag. Feel free to email us!
Laura
Dennis:
Please look at this site. celebrationostomysupportbelt.com
My brother was an ostomate and invented this belt.
I have sent many of them to ostomates. This is a belt that would solve a loty of your concerns.
I am going to be offering this for sale on line shortly.
Let me know if I can give you any help or information.
Jack
hello. im sabrina from argentina. i have or had Cu. im with an ileostomy. take a look my 2 webs.
http://www.colitisulcerosa.blogspot.com
http://www.miileo.blogspot.com
i undertand english but i dont write well.
i have 27 years old. im with this thing from year 2004.
by!
My bestfriend was diagnosed with UC a few months ago and we’ve been doing a lot of research online, especially about surgery.I just read on this great blog that Remicade will help with a colon cleanse to avoid a colectomy. Read more: http://www.orderonlinedrugs.com/drug-news/2009/10/13/colitis-patients-rejoice-this-drug-may-help-you-avoid-surgery/.
Remicade is indeed a good drug for many people. For some people it works very well. For me, it offered only marginal positive effects for a very short period of time, then did nothing for me. The question many people have, including my doctors at time, was how well Remicade would work long term. This study in the blog you mentioned checked up on patients after a year. But ulcerative colitis is a life long disease. How well will Remicade work after 5 years? 10 years? 30 years? Remicade was only approved for use in ulcerative colitis a few years ago. Hopefully it’s effects continue with extended use.
~Dennis
Fieldwork Denver is putting togather a focus group about Ulerative Colitis. It is going to take place in Denver and pays you 125.00 for your time . If you are interested please give me a call at 303-825-7788 . Thank you for your time
Remicade is indeed a good drug for many people. For some people it works very well. For me, it offered only marginal positive effects for a very short period of time, then did nothing for me. The question many people have, including my doctors at time, was how well Remicade would work long term. This study in the blog you mentioned checked up on patients after a year. But ulcerative colitis is a life long disease. How well will Remicade work after 5 years? 10 years? 30 years? Remicade was only approved for use in ulcerative colitis a few years ago. Hopefully it’s effects continue with extended use.
+1