Welcome to UCVlog.com! Here you will find TONS of information about living with inflammatory bowel disease, living with an ostomy, and living with a J-Pouch. Take it from two young people who have been through it all and aren’t afraid to share their stories.
Donate Ostomy Supplies to Haiti!
If you have any unused/new ostomies supplies that you no longer need, send them to somebody who does! The people of Haiti need our help.
Pictures of the different types of pouches
Question: Do you have an S-pouch or W-pouch or know somebody who does? Tell us about it!
Earlier this year, I was seeing my dermatologist because my ostomy scar started to form keloids and became hypertrophic. To reduce some of the overgrowth of scar tissue, I began receiving steroid injections in my scar. But that treatment can only be done 3-4 rounds and additional treatment is needed. So, my doctor suggested I use silicone patches to reduce some of the scar tissue growth. I started using them on May 5th, 2010. The treatment is supposed to take approximately 12 weeks. After a few months, I stopped using the silicone scar patch. My scar started showing improvement, but it started to atrophy, so it stopped. Be sure to see my other video on this scar issue.
“A really strong woman accepts the war she went through and is ennobled by her scars.” ~Carly Simon
~Nadia
QUESTION: HAVE YOU HAD NON-IBD RELATED SIDE EFFECTS FROM ANYTHING YOU HAVE ENCOUNTERED WITH THIS ILLNESS? (I.E. SCAR PROBLEMS, JOINT PAIN, SKIN PROBLEMS, HAIR LOSS ETC.) WHAT ARE YOU DOING ABOUT IT? SHARE HERE!
More information
Barnett Continent Intestinal Reservoir
Question: Do you have a Kock pouch or BCIR? Tell us what it’s like to live with one!
Hey Everyone,
I wanted to say thank you to those who have donated their ostomy supplies to Haiti. The ostomy supply donations have been pouring in! I am taking donations all year round–Each October the supplies are sent with doctors and nurses to Haiti. So, don’t stop!!!! Keep them coming. If you have unused, new ostomy supplies that you no longer need make sure to consider sending them for a great cause.
To find more information click here to donate your ostomy supplies to Haiti.
For further questions and information please email me at Nadia@UCVlog.com
I recently updated the inventory and took a photo of what we have collected so far. I am OVERJOYED by everyone’s generosity and willingness to help others in need. Our UCVloggers ROCK! Love you all!
Happy Ostomy Awareness Day!!!
“For it is in giving that we receive.” ~St. Francis of Assisi
~Nadia
UCVlog Ostomy Supply Donation
My brother took time to answer a few questions for me on how my illness impacts him. I’m really close to both of my brothers and it was very interesting to hear Nabeel’s perspective. I always feel bad because a lot of the focus in the family is on me, but I’m glad to know that my brothers don’t resent or complain about anything. I’m very lucky. I love you Nabeel!!! Thanks so much!
Siblings are the people we practice on, the people who teach us about fairness and cooperation and kindness and caring—quite often the hard way. ~Pamela Dugdale
~Nadia
QUESTION: HOW DOES YOUR ILLNESS IMPACT YOUR FAMILY? SHARE WHAT WAYS THAT YOUR ILLNESS HAS CHANGED THOSE AROUND YOU.
This Sunday the United Ostomy Associations of America is celebrating the first ever Ostomy Awareness Day. Everybody involved in the online ostomy community is excited, since it’s through the internet that many people first hear about ostomies.
Keep fighting,
~Dennis
QUESTION: FOR THOSE OF YOU FACING SURGERY, WHAT QUESTIONS OR FEARS DO YOU HAVE? SHARE HERE AND LET OTHERS WHO HAVE GONE THROUGH THIS BEFORE YOU HELP YOU AS YOU FACE THIS BIG DECISION.
Question: What type of colostomy do you have? Answer below!
QUESTION: AT ANY STAGE DURING YOUR ILLNESS HAVE YOU EVER EXPERIENCED DEPRESSION, ANXIETY, PANIC ATTACKS, ISOLATION, OR OVERWHELMING STRESS DUE TO YOUR IBD? THIS UNDERSTANDABLY IS A VERY SENSITIVE SUBJECT AND WE RESPECT YOUR WILLINGNESS TO SHARE.
Last week some friends and I went to Winnipeg, Manitoba, and it was definitely a great vacation to take in the middle of the summer! Several of us worked over Independence Day, so unfortunately we didn’t get a chance to partake of holiday activities. I work at a television station doing some technical work to keep the station on the air, and television always needs to be on, so that’s where I was.
Keep fighting,
~Dennis
